Emotional Wellbeing for Families

About this resource

A health condition affects feelings as well as the body, for children and for those who care for them. Talking openly, keeping familiar routines, and reaching out for support all help. You do not have to manage everything alone.

Practical guidance

Listen to your child and answer questions honestly and gently
Keep routines and small joys part of everyday life
Reach out to family, friends, or support groups
Seek professional support if worry or sadness feels overwhelming

Key takeaways

Emotional health matters as much as physical health
Open, gentle conversation helps children feel secure
Support for caregivers is a strength, not a weakness

Caring for Your ChildPDF
Caregiver Handbook
A practical companion for day-to-day caregiving, from routines and appointments to looking after yourself.
Read resource
School & EducationChecklist
School & Education Support
Helping your child take part fully at school, with practical steps for working with teachers.
Read resource

Downloads

Emotional Wellbeing for Families

Poster

Available soon

Connective Tissue DisordersRare Diseases
Ehlers-Danlos Syndrome
A group of inherited conditions that affect connective tissue, the material that gives structure and support to skin, joints, and blood vessels.
Body system:
Connective tissue
Related:Lysosomal Storage DisordersCystic Fibrosis
Learn more

About this resource

Practical guidance

Key takeaways

Related resources

Caregiver Handbook

School & Education Support

Downloads

Related conditions

Ehlers-Danlos Syndrome

About this resource

Practical guidance

Key takeaways

Related resources

Caregiver Handbook

School & Education Support

Downloads

Related conditions

Ehlers-Danlos Syndrome