School & Education Support

About this resource

With a little understanding and planning, most children with a health condition take a full part in school life. Sharing helpful information with teachers, and agreeing simple adjustments where needed, helps your child learn and belong.

Practical guidance

Share key information with teachers at the start of the year
Agree simple adjustments, such as rest or medicine times
Keep in touch with the school about how your child is doing

Key takeaways

Most children can take a full part in school
Sharing information with teachers helps your child thrive

Emotional SupportPoster
Emotional Wellbeing for Families
Caring for the emotional health of your child and yourself while managing a health condition.
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Caring for Your ChildPDF
Caregiver Handbook
A practical companion for day-to-day caregiving, from routines and appointments to looking after yourself.
Read resource

Downloads

School & Education Support

Checklist

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Connective Tissue DisordersRare Diseases
Ehlers-Danlos Syndrome
A group of inherited conditions that affect connective tissue, the material that gives structure and support to skin, joints, and blood vessels.
Body system:
Connective tissue
Related:Lysosomal Storage DisordersCystic Fibrosis
Learn more

About this resource

Practical guidance

Key takeaways

Related resources

Emotional Wellbeing for Families

Caregiver Handbook

Downloads

Related conditions

Ehlers-Danlos Syndrome

About this resource

Practical guidance

Key takeaways

Related resources

Emotional Wellbeing for Families

Caregiver Handbook

Downloads

Related conditions

Ehlers-Danlos Syndrome