Educational resources on caregiving, early recognition, child development, and supporting your family, in plain language.
A plain-language introduction to what inherited genetic disorders are, how they are passed down, and what families can do.
A practical guide to the early signs that are worth noticing, and when to talk to a doctor.
A general guide to how children grow and develop, and the milestones many reach along the way.
A practical companion for day-to-day caregiving, from routines and appointments to looking after yourself.
How to prepare for hospital visits and appointments so you get the most from your time with the care team.
A practical guide to the early signs that are worth noticing, and when to talk to a doctor.
How to prepare for hospital visits and appointments so you get the most from your time with the care team.
Everyday tips to support healthy eating and good nutrition for your child.
Caring for the emotional health of your child and yourself while managing a health condition.
Helping your child take part fully at school, with practical steps for working with teachers.
A general guide to how children grow and develop, and the milestones many reach along the way.
How to notice when a child may need extra developmental support, and where to turn.
Printable materials to support you at home. Files become available in the Downloads Centre.
Understanding Inherited Genetic Disorders
Recognising Early Symptoms
Checklist
Development Milestones
Infographic
Caregiver Handbook
Preparing for Medical Appointments
Checklist
Feeding & Nutrition Support
Checklist
Emotional Wellbeing for Families
Poster
School & Education Support
Checklist
Recognising Developmental Delays
Infographic
Learn more about the conditions covered on Shared Blood.
An inherited blood disorder that affects how the body produces hemoglobin, the protein red blood cells use to carry oxygen.
An inherited condition that mainly affects the lungs and digestive system by changing how the body manages mucus and salt.
A group of rare inherited conditions in which the body's cells cannot break down certain substances, allowing them to build up over time.
Related:Beta ThalassemiaCystic Fibrosis
A group of inherited conditions that affect connective tissue, the material that gives structure and support to skin, joints, and blood vessels.
